More information

·        Teenage Cancer Trust is a company registered in England and Wales

·        Our company number is 3350311

·        We are a charity registered in England and Wales, number 1062559

·        We are also registered in Scotland, charity number SC039757

·        Our registered office address is 93 Newman Street, London, W1T 3EZ

Purpose

Information collected/used

Details

To provide you with access to the portal, manage your account and to tell you about updates or changes to the portal.

·        Name

·        Contact details

·        Login details

·        The fact of your diagnosis

·        Who is responsible for your treatment (clinical team)

·        Login and usage records

When we provide the portal service to you, we agree to do so in a certain way, which forms a contract between us.

We need this information to do what that contract says we will do.

Your diagnosis, even if you have completed treatment, establishes your eligibility for the portal service. As this is about your health, we will ask for your consent (permission) before you sign up for this website’s service, to make sure you understand your choice in providing this

information.

To provide you with the

support you might need as a

·        Name

·        Contact details

As well as being part of the

charity’s function, we also

result of your diagnosis, including specifically in response to information you enter into the portal via our self-assessment tool, as well as in assisting the emergency services where required.

·        Account information

·        Details of your diagnosis

·        Additional information about your health and wellbeing that you provide to us

support the healthcare professionals working with you (your clinical team) to make sure you receive the most appropriate care.

We will share information in your assessments with your clinical team to ensure you receive the best possible care.

It is your choice how much information you provide, and whether to use the self- assessment tool. We will ask for your consent (permission) to use your health and wellbeing information in this way.

To respond to or fulfil any requests, complaints or queries we receive from you, and to keep a record of our relationship with you.

·        Name

·        Contact details

·        Account information, where necessary

·        The content of your messages

We have a legitimate interest in receiving and storing this information, which you have chosen to provide to us.

It helps us keep a record of how we have responded, to understand what we have discussed in the past and as evidence for us or you in case

of any disagreement.

To create reports and provide information for use within the charity or for publication, in ways that will not identify you (anonymous), to ensure we are communicating with and delivering the best possible information and services.

·        Anonymized user activity on the IAM Portal Website

We have a legitimate interest in assessing our effectiveness as a registered charity and may be required to publish certain reports such as site analytics or make them available to government agencies such as the Charity Commission.

We will remove information that identifies you, and may also group your information together with information about other people to protect your privacy, and because it should not be necessary to

identify you for this purpose.

More information

If you choose to use our self-assessment tool, we will share the content of each assessment with your clinical team. We will ask for your consent (permission) to do this when you sign up.

Information we need…

Will be kept…

To provide you with access to the portal, manage your account and to tell you about updates or changes to the portal.

For six years after your account is closed. If you choose to close your IAM Portal Website account, any IAMs you have shared with your care team previously, will continue to be stored by your care team. If you have questions about their retention of your data, please contact

your care team directly.

To provide you with the support you might need as a result of your diagnosis, including specifically in response to information you enter into the portal via our self-assessment tool, as well as in assisting the emergency

services where required.

For six years.

To respond to or fulfil any requests, complaints or queries we receive from you, and to keep a

record of our relationship with you.

For six years.

To create reports and provide information for use within the charity or for publication, in ways that will not identify you (anonymous), to ensure we are communicating with and delivering the best possible information and services. This anonymous data will come from Google Analytics which helps us understand how the site is being used and where we need

to make changes to improve the site.

In an identifiable form, until the final draft of any such report is complete.

More information

While we are holding information about you, you can ask us to:

·        Give you a copy of some or all of it (“access”)

·        Correct any information that is inaccurate or out-of-date (“rectification”)

·        Delete or destroy information, in certain circumstances (“erasure”)

·        Stop using, but keep hold of the information (“restriction”)

·        Move the information we hold about you to another organisation (“portability”)

You can also object to (disagree with) the way we are using information about you, and the law says we have to listen to your views and take appropriate action, which may include not using it in that way anymore.

How to contact us

·        If you ever want to change the way we keep in touch with you, you can email

digital.services@teenagecancertrust.org

·        If you have a general question or would like help, you can email

digital.services@teenagecancertrust.org

·        If you would like to contact our Data Protection Officer, you can email

dataprotection@teenagecancertrust.org

You can also write to us at Teenage Cancer Trust, 93 Newman Street, London, W1T 3EZ.

You can contact the Information Commissioner's Office (ICO) to make a complaint about how we have handled information about you, by visiting https://ico.org.uk/make-a-complaint/ or call them on 0303 123 1113.